PHantasticALS are extraordinary, rare and resilient creatures, but they usually go unnoticed, or dismissed as improbable, just like people who live with Pulmonary Hypertension (PH) and Amyotrophic Lateral Sclerosis (ALS). It’s time we started to recognise them for what they are.
ALS and PH are both rare diseases, which means that they are often overlooked and sometimes diagnosed too late. Let’s keep our eyes peeled for these extraordinary PHantasticALS who are resiliently living with these difficult conditions, every day.
PH patients are like mermaids. ALS patients are like dragons. These PHantasticALS are real.